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antiretroviral therapies is a welcome relief for AIDS patients. But once started, antiretrovi-ral drugs (ARVs) must be taken reli-giously and for the rest of one’s life if they are to be effective. Drug resist-ance can result when ARVs are not may hamper future treatment efforts. Adherence, then, has been identified as the most critical component of effective antiretroviral therapy pro-grams. In 2004, Concern International (PCI) started engaging provide antiretroviral adherence sup-PCI manages this pro-Urban District Health Management Hospital and the Centre for Infectious Disease Research in Zambia (CIDRZ), which is a collaboration with the University of Alabama-Birmingham. PCI works through and is strength-ening an established network of care organizations, presence and status in the communi-ties they serve. As a result, in the first year of the program, reported adher-ence rates are above 95%, and there are significant increases in the number of people attending voluntary counseling and testing services. hospitals. Supplementation pilot study to assess the impact of food with or without food supplementation. The patients, and PCI rations to identified patients with organizations. potentially influence the scale-up of this MAJOR ACTIVITIES Antiretroviral Therapy and Monitoring PCI trains ence, including the basics of HIV/AIDS cial counseling, data collection and monitoring. to health centers. Z THERAPY ADHERENCE THROUGH 9/05 ambia’s introduction of free taken properly, a phenomenon which Project home-based care organizations to port to AIDS patients in Lusaka and, later, Mongu. gram in partnership with the Lusaka Board, Mongu Lewanika General home-based whose caregivers have long-standing tions and health centers are forging the partnerships they need to sustain and replicate this critical program. To date, PCI and its partners are supporting 7,131 patients on ARVs, in collabora-tion with 13 government clinics and/or Pilot Study on Food PCI and CIDRZ are conducting a on adherence and patient well-being, with support from the World Food Programme. The study group is divided into patients who are receiving home-based care adherence support program’s targeting tool identifies food-insecure ART provides individual and/or household support from the home-based care Data on the role of food on adher-ence and treatment outcomes will program throughout Zambia as well as in other resource-poor, high prevalence countries throughout the world. (ART) Adherence Support PCI works with home-based care organizations to provide adherence sup-port to patients receiving ARVs from government health centers. home-based care organizations in a range of topics vital to ensuring proper adher-and tuberculosis, adherence, psychoso-With CIDRZ, PCI also developed the first ART adherence train-ing manual for home-based caregivers in Zambia. Home-based caregivers act as the ‘eye of the health centers’ and not only pro-vide ART adherence support, but also refer patients who miss clinic appoint-ments and those with severe side effects By maintaining strong referral links, home-based care organiza-SUPPORTING ANTIRETROVIRAL HOME-BASED CAREGGaaiinniinngg tthhee CCoouurraaggee ttoo SSeeeekk HHeellpp:: OOnnee PPaattiieenntt’’ss SSttoorryyWhen I first learned I had tuberculosis, in 2003, I felt like the world had col-lapsed on me. I was convinced I was going to die. With stories I had heard from the community, tuberculosis was a clear sign of HIV/AIDS, and to me HIV/AIDS meant nothing but death. Even though I was reluctant to take TB drugs, and told my nurse that it was better to die and not prolong my suffering, she assured me that TB could be cured. She also told me that there was a group of women based at the clinic who gave support to TB patients like me and visited patients at home to ensure they took the medicine. I decid-ed to register with this group, Human Resource Trust, because I was only staying with my daughter at home, and I needed somebody to support me with my treatment. I am alive today and don’t have TB anymore because of these women. They encouraged me to take the drugs all the time until I completed my course after six months. The second hurdle came when my caregivers started encouraging me to go for an HIV test. Although the TB was cured, I start-ed having recurring ailments, like severe headaches and malaria. I didn’t want to go for an HIV test but instead chose to go to a traditional healer. My situation worsened. My legs swelled so much that I couldn’t walk. But the caregivers from Human Resource Trust kept on encouraging me to go for an HIV test. I finally heeded my caregivers’ advice. I was found HIV positive and after all the lab tests, in August 2004, I started on ARVs. My legs are okay now and I can walk properly. The recurring illnesses have all gone now except for minor side effects I get from taking the ARVs. I would have died by now if it was not for the encouragement of these hardworking caregivers. Human Resource Trust Kalingalinga is one of 31 community-based care sites PCI supports to conduct home-based adherence monitoring for patients on ARVs. PARTNERS Lusaka Urban District Health Management Team (10 sites) ❘ University of Zambia Health Center ❘ Mongu Lewanika General Hospital ❘ Center for Infectious Disease Research in Zambia - University of Alabama, Birmingham ❘ United Nations World Food Programme ❘ Bwafwano Community Home-based Care Organization ❘ Lusaka Catholic Diocese Home Based Care Program (17 sites) ❘ Mongu Catholic Diocese Home Based Care Program ❘ Network of Zambian People Living with HIV/AIDS, Mongu Chapter (5 sites) ❘ Musayope Support Group ❘ Kamanga Community Based Tuberculosis Organization ❘ Our Lady’s Hospice ❘ Salvation Army Kanyama ❘ Human Resource Trust (2 sites) PCI’s ART adherence support project is funded by the Centre for Infectious Disease Research Zambia (a collaboration with the University of Alabama, Birmingham) under a grant from the U.S. President's Fund for AIDS Relief through the Elizabeth Glaser Pediatric AIDS Foundation, and the World Food


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MIT SP 783 - Study Notes

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